dc.creator | Argüelles Arias, Federico | es |
dc.creator | Carpio, Daniel | es |
dc.creator | Calvet, Xavier | es |
dc.creator | Romero De Santos, Cristina | es |
dc.creator | Cea Calvo, Luis | es |
dc.creator | Juliá, Berta | es |
dc.creator | López Sanromán, Antonio | es |
dc.date.accessioned | 2024-05-20T16:00:18Z | |
dc.date.available | 2024-05-20T16:00:18Z | |
dc.date.issued | 2017 | |
dc.identifier.citation | Argüelles Arias, F., Carpio, D., Calvet, X., Romero De Santos, C., Cea Calvo, L., Juliá, B. y López Sanromán, A. (2017). Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey. Revista Española de Enfermedades Digestivas, 109 (6), 421-429. https://doi.org/10.17235/reed.2017.4748/2016. | |
dc.identifier.issn | 1130-0108 | es |
dc.identifier.issn | 2340-4167 | es |
dc.identifier.uri | https://hdl.handle.net/11441/158700 | |
dc.description.abstract | colitis (UC) about their disease and access to a specialist are
important to improve health outcomes. Our objective was to
determine, by collecting information directly from the patients, their
information sources and knowledge of the disease, and the options
for access to the gastroenterologist.
Methods: The information was collected using a printed
survey handed out by 39 gastroenterologists to 15 consecutive
adult patients with UC. Patients answered anonymously from their
home. The responses were stratified by hospital size (> 900; 500
900; < 500 beds).
Results: A total of 585 patients received the survey and 436
responded (74.5%; mean age of 46 years [13.5], 53% men). The
main information source was the specialist physician (89.2%).
Between 32% and 80% of patients had areas of improvement
regarding knowledge of their disease. Knowledge of the disease
was better in patients from small hospitals (< 500 beds). The
frequency of routine visits was also higher in small hospitals. In
case of a flare-up, 60% stated they were able to contact their
doctor by phone and 37%, that they could get an appointment
on the same day. The percentage stating that they had to ask for
an appointment and wait until their physician was available was
lower in small hospitals.
Conclusions: There are areas of improvement with regard to
knowledge of their disease in patients with UC followed in hospital
clinics. Patients followed in small hospitals seem to know their
disease better, are followed more frequently in the clinic, and have
better access in case of a flare-up. | es |
dc.format | application/pdf | es |
dc.format.extent | 8 p. | es |
dc.language.iso | eng | es |
dc.publisher | Aran Ediciones S.A. | es |
dc.relation.ispartof | Revista Española de Enfermedades Digestivas, 109 (6), 421-429. | |
dc.rights | Attribution-NonCommercial-NoDerivatives 4.0 Internacional | * |
dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | * |
dc.subject | Ulcerative colitis | es |
dc.subject | Self-management | es |
dc.subject | Information sources | es |
dc.subject | Knowledge of disease | es |
dc.subject | Access to physician | es |
dc.title | Knowledge of disease and access to a specialist reported by Spanish patients with ulcerative colitis. UC-LIFE survey | es |
dc.type | info:eu-repo/semantics/article | es |
dc.type.version | info:eu-repo/semantics/publishedVersion | es |
dc.rights.accessRights | info:eu-repo/semantics/openAccess | es |
dc.contributor.affiliation | Universidad de Sevilla. Departamento de Medicina | es |
dc.relation.publisherversion | https://www.reed.es/ArticuloFicha.aspx?id=1724&hst=0&idR=49&tp=1 | es |
dc.identifier.doi | 10.17235/reed.2017.4748/2016 | es |
dc.journaltitle | Revista Española de Enfermedades Digestivas | es |
dc.publication.volumen | 109 | es |
dc.publication.issue | 6 | es |
dc.publication.initialPage | 421 | es |
dc.publication.endPage | 429 | es |