dc.creator | Glaspy, Shannon | es |
dc.creator | Avramovic, Gordana | es |
dc.creator | McHugh, Tina | es |
dc.creator | Oprea, Cristiana | es |
dc.creator | Surey, Julian | es |
dc.creator | Ianache, Irina | es |
dc.creator | Macías Sánchez, Juan | es |
dc.creator | Lambert, John S. | es |
dc.date.accessioned | 2022-10-28T13:48:58Z | |
dc.date.available | 2022-10-28T13:48:58Z | |
dc.date.issued | 2021 | |
dc.identifier.citation | Glaspy, S., Avramovic, G., McHugh, T., Oprea, C., Surey, J., Ianache, I.,...,Lambert, J.S. (2021). Exploring and understanding HCV patient journeys- HEPCARE Europe project. BMC Infectious Diseases, 21 (1), 239. https://doi.org/10.1186/s12879-021-05928-9. | |
dc.identifier.issn | 1471-2334 | es |
dc.identifier.uri | https://hdl.handle.net/11441/138473 | |
dc.description.abstract | Background: Hepatitis C Virus (HCV) is a leading cause for chronic liver diseases worldwide. The European Union
and World Health Organization aspire to eliminate HCV by 2030. However, among at-risk populations, including,
homeless people, prisoners and People Who Inject Drugs, access to diagnosis and treatment is challenging.
Hepcare Europe is an integrated model of care developed to address this by assessing potential reasons for these
restrictions and determining measures needed to improve HCV diagnosis, treatment and access to care within
different communities.
Objectives: HepCare Europe is an EU-supported project involving collaboration between five institutions in: Ireland,
United Kingdom, Spain and Romania. We aim to explore the journey of care experienced by those living with HCV
with a focus on previous care disruptions (loss to follow up) and the new HepCare Europe Programme.
Methods: Research teams conducted semi-structured interviews with patients who accessed services through
HepCare Europe thus, patients were recruited by purposeful sampling. Patients interviewed had received, or were in
the final weeks of receiving, treatment. The interviews were audio recorded, transcribed and translated into English,
and sent to the Dublin team for inductive thematic analysis. Researchers from the HepCare Europe research team
coded the data separately, then together.
Results: Common themes are introduced to present similarities, following individual site themes to highlight the
importance of tailored interventions for each country. Key themes are: 1) Hepatitis C patients lost to follow up 2)
HepCare improved access to treatment and 3) the need for improved HCV education. Individual themes also
emerged for each site. These are: Ireland: New opportunities associated with achieving Sustained Virologic
Responses (SVR). Romania: HCV is comparatively less crucial in light of Human Immunodeficiency Viruses (HIV)
coinfections. UK: Patients desire support to overcome social barriers and Spain: Improved awareness of HCV,
treatment and alcohol use.
Conclusion: This study identified how the tailored HepCare interventions enabled improved HCV testing and
linkage to care outcomes for these patients. Tailored interventions that targeted the needs of patients, increased
the acceptability and success of treatment by patients. HepCare demonstrated the need for flexibility in treatment
delivery, and provided additional supports to keep patients engaged and educated on new treatment therapies | es |
dc.format | application/pdf | es |
dc.format.extent | 10 p. | es |
dc.language.iso | eng | es |
dc.publisher | Biomed Central LTD | es |
dc.relation.ispartof | BMC Infectious Diseases, 21 (1), 239. | |
dc.rights | Attribution-NonCommercial-NoDerivatives 4.0 Internacional | * |
dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | * |
dc.subject | Hepatitis C | es |
dc.subject | Vulnerable populations | es |
dc.subject | People who inject drugs (PWID) | es |
dc.subject | Homeless | es |
dc.subject | Lost to follow up (LTFU) | es |
dc.subject | Integrated HCV care | es |
dc.title | Exploring and understanding HCV patient journeys- HEPCARE Europe project | es |
dc.type | info:eu-repo/semantics/article | es |
dcterms.identifier | https://ror.org/03yxnpp24 | |
dc.type.version | info:eu-repo/semantics/publishedVersion | es |
dc.rights.accessRights | info:eu-repo/semantics/openAccess | es |
dc.contributor.affiliation | Universidad de Sevilla. Departamento de Medicina | es |
dc.relation.publisherversion | https://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-021-05928-9 | es |
dc.identifier.doi | 10.1186/s12879-021-05928-9 | es |
dc.contributor.group | Universidad de Sevilla. CTS1095: Grupo Virología Clínica e ITS | es |
dc.journaltitle | BMC Infectious Diseases | es |
dc.publication.volumen | 21 | es |
dc.publication.issue | 1 | es |
dc.publication.initialPage | 239 | es |