dc.creator | Sánchez-Andrades, María José | es |
dc.creator | Vinolo-Gil, María Jesús | es |
dc.creator | Casuso-Holgado, María Jesús | es |
dc.creator | Barón-López, Javier | es |
dc.creator | Rodríguez-Huguet, Manuel | es |
dc.creator | Martín-Valero, Rocío | es |
dc.date.accessioned | 2023-05-02T14:44:00Z | |
dc.date.available | 2023-05-02T14:44:00Z | |
dc.date.issued | 2023 | |
dc.identifier.citation | Sánchez-Andrades, M.J., Vinolo-Gil, M.J., Casuso-Holgado, M.J., Barón-López, J., Rodríguez-Huguet, M. y Martín-Valero, R. (2023). Measurement Properties of Self-Report Questionnaires for Amyotrophic Lateral Sclerosis: A Systematic Review and Meta-Analysis of Commonly Used Instruments. INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (1661-7827 / 1660-4601), 20 (4), 3310. https://doi.org/10.3390/ijerph20043310. | |
dc.identifier.issn | 1661-7827 | es |
dc.identifier.uri | https://hdl.handle.net/11441/144941 | |
dc.description.abstract | Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease. There
is no evidence on the analysis of the measurement instruments available to assess quality of life in
these patients, following the consensus-based standards for the selection of health measurement
instruments (COSMIN) checklist; (2) Methods: A systematic review was performed in PubMed,
Embase, PEDro,Web of Science and Cochrane. The psychometric properties of the questionnaires
were determined by using the COSMIN checklist. Two searches were carried out. This systematic
review was registered in PROSPERO (CRD42021249005); (3) Results: There were four published
articles that analysed the measurement properties in patients with ALS for the following scales:
Amyotrophic Lateral Sclerosis Assessment Questionnaire 40, Amyotrophic Lateral Sclerosis-Specific
Quality of Life Questionnaire, Short Form 36 Healthy Survey, Epworth Sleepiness Scale and Sickness
Impact Profile. Another five scales also met the inclusion criteria: ALS-Depression-Inventory, State
Trait Anxiety-Inventory, World Health Organization Quality of Life, Schedule for the Evaluation
of Individual Quality of Life, Amyotrophic Lateral Sclerosis Assessment Questionnaire 5. Most
Patient Reported Outcome Measures (PROMs) present a low-quality synthesis of evidence. It was
observed an excellent pooled reliability of 0.92 (95% Confidence Interval: 0.83–0.96, I2 = 87.3%) for
four dimensions for questionnaires ALSAQ-40. (4) Conclusions: There is little evidence on generic
instruments. Future studies are necessary to develop new tools. | es |
dc.format | application/pdf | es |
dc.format.extent | 19 p. | es |
dc.language.iso | eng | es |
dc.publisher | MDPI | es |
dc.relation.ispartof | INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (1661-7827 / 1660-4601), 20 (4), 3310. | |
dc.rights | Atribución 4.0 Internacional | * |
dc.rights.uri | http://creativecommons.org/licenses/by/4.0/ | * |
dc.subject | Quality of life | es |
dc.subject | Amyotrophic lateral sclerosis | es |
dc.subject | Design questionnaire | es |
dc.subject | Validation studies | es |
dc.subject | Patient reported outcome measures | es |
dc.subject | Systematic review | es |
dc.title | Measurement Properties of Self-Report Questionnaires for Amyotrophic Lateral Sclerosis: A Systematic Review and Meta-Analysis of Commonly Used Instruments | es |
dc.type | info:eu-repo/semantics/article | es |
dc.type.version | info:eu-repo/semantics/publishedVersion | es |
dc.rights.accessRights | info:eu-repo/semantics/openAccess | es |
dc.contributor.affiliation | Universidad de Sevilla. Departamento de Fisioterapia | es |
dc.relation.publisherversion | https://www.mdpi.com/1660-4601/20/4/3310 | es |
dc.identifier.doi | 10.3390/ijerph20043310 | es |
dc.journaltitle | INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (1661-7827 / 1660-4601) | es |
dc.publication.volumen | 20 | es |
dc.publication.issue | 4 | es |
dc.publication.initialPage | 3310 | es |