Artículo
The European Map of Axial Spondyloarthritis: Capturing the Patient Perspective—an Analysis of 2846 Patients Across 13 Countries
Autor/es | Garrido Cumbrera, Marco
Poddubnyy, Denis Gossec, Laure Gálvez Ruiz, David Bundy, Christine Mahapatra, Raj Makri, Souzi Christen, Laura Delgado Domínguez, Carlos Jesús Sanz-Gómez, Sergio Plazuelo Ramos, Pedro Navarro-Compán, Victoria |
Departamento | Universidad de Sevilla. Departamento de Estadística e Investigación Operativa |
Fecha de publicación | 2019 |
Fecha de depósito | 2022-10-18 |
Publicado en |
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Resumen | Purpose of Review Scientific research in axial spondyloarthritis (axSpA) has grown significantly. Nevertheless, the patient perspective remains insufficiently explored. Using a cross-sectional survey, the European Map of ... Purpose of Review Scientific research in axial spondyloarthritis (axSpA) has grown significantly. Nevertheless, the patient perspective remains insufficiently explored. Using a cross-sectional survey, the European Map of Axial Spondyloarthritis (EMAS) describes how patients living with self-reported axSpA experience their disease physically, psychologically, and socially. Recent Findings 2846 patients participated: mean age 43.9 ± 12.3 years, 61.3% female, mean disease duration was 17.2 ± 12.4 years, and 71.3% were HLA-B27 positive. Mean diagnostic delay was 7.4 ± 8.4 years. Mean BASDAI score was 5.5 ± 2.0 and 75.7% reported moderate/severe spinal stiffness throughout the day. Daily life was substantially impaired: 74.1% reported difficulties finding a job due to the disease, and 61.5% reported psychological distress. Summary EMAS results showed long diagnostic delay and substantial physical and psychological burden, indicating important unmet needs for patients. Furthermore, axSpA restricted patients’ ability to participate in their daily routine and lead a productive work life. Understanding the patient’s perspective can improve both health outcomes and shared decision-making between patient and rheumatologist. |
Cita | Garrido Cumbrera, M., Poddubnyy, D., Gossec, L., Gálvez Ruiz, D., Bundy, C., Mahapatra, R.,...,Navarro-Compán, V. (2019). The European Map of Axial Spondyloarthritis: Capturing the Patient Perspective—an Analysis of 2846 Patients Across 13 Countries. Current rheumatology reports, 21, 19-1-19-9. https://doi.org/10.1007/s11926-019-0819-8. |
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